VitLife

Volunteer with Us

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Here at The Vitiligo Society we are a small charity, run by a dedicated, friendly team of volunteers. Everyone in our team has been affected by vitiligo in some way, and we work together to try to make living with the condition easier for everyone in the UK, and around the world. We believe that we can do more for our vitiligo community by working together, and we are always eager to hear from any enthusiastic volunteers who would like to be a part of our work.

Our Team

The Vitiligo Society is a UK based charity which works remotely (we all work from our homes), whose main aim is to support people with the skin condition, vitiligo. Vitiligo affects 1-2% of the world’s population and can also have detrimental psychological effects on people’s lives

We are a volunteer-led charity with a small group of friendly trustees who would love your help in a variety of different areas. We have opportunities, big and small, across areas such as fundraising, clinical research, social media, content writing, accounting and web administration.  Whatever your superpower is, trust us we will put it to good use!  

These roles are on a volunteer basis and expected to take up a minimum of around 4 hours per month. You can be located anywhere in the UK, but you will need access to a computer and the internet. Most of our meetings will be done via video conference.

What are we looking for?

We’re looking for self-starters who want to roll up their sleeves and put their skills to use to help others.  

We welcome people of all experience levels who are excited by the opportunity to make a difference not only in improving how the Society operates but also improving the lives of tens of millions of people with vitiligo all around the world.

Passion is our number one criteria – if this is you then please get in touch.

What roles are available?

There are so many ways in which you can help our charity depending on your skills and what you enjoy doing, below are just some suggestions:

Community fundraising & Campaigns: A new project group beginning in January 2022 will be looking at how we can inspire our community to help raise funds and awareness to enable us to better support people living with vitiligo. Like all our project groups this will likely meet once a month in the evening.

The VitLife Creative Team: We have a team of writers who support Natalie (our editor) with the VitLife and article writing, articles include storytelling, lifestyle tips and general treatment information.

Parent Support Network: We have a Parent Support Network who look at creating content and articles to help parents and also host a monthly virtual event for parents and children. The organising group always welcome new volunteers and help. They are in need of extra help, especially with social media and website content. The team meets at 5pm on a Wednesday every few weeks.

Survey Working Group: We have a group of volunteers who are compiling a research survey to help us better understand the impact that living with vitiligo has on people in the UK. The group meet monthly on a Thursday evening, we don’t require any extra support with this but new volunteers with an interest are always welcome to join us.

Education Working Group: This new group is looking at developing education resources for schools. We are currently working on a presentation designed for early years and then we’ll look at something to support teenagers. They group is looking for young ambassadors to help support their work and also potential school speakers.

Shop Development: We have a lovely volunteer called Emily who runs our online shop. Emily has a group of ambassadors who help steer in terms of product design and also help model products. She would welcome anyone with expertise in design, sales or merchandising to help us develop this revenue stream.

Medical and Scientific Partnership development: One of our new trustees Alex is working on developing our medical and scientific partnerships – this includes growing our medical and scientific advisory panel, keeping our medical and scientific information up-to-date, reporting on research and exploring how we can better support medical and healthcare practitioners.

Peer Support & events: Last year we piloted a new peer support service, and we will be introducing this and our guest speaker events as a regular service for 2022. Currently we only have one volunteer working in this and it’s a critical service for our charity – we’d welcome new volunteers with any experiencing in networking, presenting or event coordination.

Software and system management: We use WordPress and an open source CRM system – all of which require maintenance. We recently lost a key volunteer who used to look after this for us, so we would welcome any new tech-savvy volunteers to the team!

General enquiries and VitChat service: Our amazing admin team would welcome new volunteers! Currently this team help answer our charity inbox and respond to our voicemail service. They are also exploring introducing a new service ‘The VitChat’ allowing for our community to have live chats with volunteers when they need help or someone with lived experience of vitiligo to talk to.

Using your skills to help us do better: We do so many activities, nearly all of which are run by volunteers. Have a look at our website and social media and let us know what you think you could help with! We are always open to new ideas and we want our volunteers to feel able to use their skills and experiences to help others. If there is something we could be doing but aren’t then please let us know! 

What difference will you make?

You will become a key part of a small team who work to support people living in the UK.

Our mission is to beat vitiligo by eradicating the psychological, social and physical effects on people’s lives and by finding effective treatments and a cure.

If you are interested in applying, please complete our Volunteer Application Form or contact hello@vitiligosociety.org.uk for more information.

We look forward to hearing from you!

Video created by The Vitiligo Society