Orlando was this year’s chosen location for an inspiring and knowledge-packed few days as I attended the Global Vitiligo Foundation (GVF) Scientific Symposium and the American Academy of Dermatology (AAD) Conference. It was an unforgettable experience, filled with cutting-edge research, powerful discussions, and invaluable connections with some of the leading minds in dermatology and the vitiligo community.

Day 1: Global Vitiligo Foundation Scientific Symposium

The GVF Scientific Symposium brought together some of the most renowned experts in the world of dermatology. Attended by Dr John Harris, Dr Pearl Grimes, Dr Amit Pandya and Dr Richard Huggins, it was an absolute privilege to be in the same room as the incredible experts who have helped lead the conversations and shape vitiligo in today’s world. Also present were researchers, patient advocates, and those living with vitiligo to discuss the latest advancements in treatment, research, and patient support. I was particularly struck by the collaborative spirit in the room—so many dedicated professionals working tirelessly to improve the lives of people with vitiligo.

The session, which took place at the Hyatt Regency Hotel, invited attendees to pre-submit their abstracts and have their work heard by some of the best researchers and clinicians in the world. Of the abstracts shared we got to hear about the possible connection between vitiligo and hearing loss, the results of clinical trials, the impact of early intervention, the success rate of phototherapy and the differences between treating the early onset of vitiligo compared to someone who has had the condition for many years.

One of the key takeaways was the continued progress in UVB Phototherapy working in parallel with an oral drug. UVB continues to be seen as a promising treatment where patients have seen positive results, some within a matter of weeks. Seeing the commitment to finding better solutions for repigmentation and overall skin health was truly uplifting. But beyond the science, it was the patient-first approach that resonated most—conversations centered around quality of life, mental health, and the importance of community support.

Day 2: AAD Conference – Innovation & Awareness

The AAD Conference was a deep dive into the broader world of dermatology, but vitiligo still had a strong presence, especially with Clinuvel who invited me to speak as part of their agenda.

The impressive pavilion, designed by the Clinuvel team, took you on an interactive journey starting from the time when they were formed in 1980 to the present day as they continue to embark on

As part of their appearance at the ADD, the focus for Clinuvel was to talk about their ongoing clinical trial in vitiligo where patients have seen repigmentation in their skin. The pavilion was beautifully designed with photos of those with vitiligo displayed throughout, showing the true beauty of vitiligo. A demonstrative video played on repeat, touching on the science behind vitiligo, ambassadors spoke about the challenges they’d faced with vitiligo on small screens and each of the walls displayed educational pieces about the treatment and the growth of Clinuvel.

My stage day was Friday 7^th March and I was incredibly nervous, although the feeling was calmed when I saw the space where I would be speaking – a lovely, intimate spot with high tables and velvet chairs which created a relaxed, homely feel and immediately made me feel at ease. Just after 12:15, I started my presentation and spoke about how I had learned to love my skin, since discovering my first patch at the age of three. It was an incredible experience and it felt really impactful addressing a room of health experts who likely deal with vitiligo patients as part of their own professional careers.

Building Connections & Looking Ahead

Beyond the scientific discussions, one of the most rewarding aspects of this trip was connecting with others who share a passion for vitiligo advocacy and who themselves, have the condition. Having the opportunity to be around the very people that understand what it’s like to live day to day with the condition, was both humbling and uplifting. I genuinely felt like I was around my extended family. I felt safe and I felt more understood than I’ve ever felt. It made it a completely enriched experience.

Whether it was meeting renowned dermatologists, researchers, or fellow patient advocates, every conversation reinforced the progress being made—and how much more work there is to do.

I left Orlando feeling empowered and motivated. The insights gained from these conferences will undoubtedly shape the future of vitiligo treatment, research, and awareness efforts. As a director at the Vitiligo Society, I’m excited to take this knowledge forward, continue advocating for change, and find new ways to support those living with vitiligo.

The GVF Scientific Symposium and AAD Conference proved just how far we’ve come in vitiligo research and advocacy—but also how much potential lies ahead. From groundbreaking treatments to the growing global vitiligo community, the future looks bright.