The Vitiligo Society are embarking upon a series of initiatives to provide accessible and active support to its community members. We recognise what a challenging and perhaps lonely journey Vitiligo can be, and how important a space that enables individuals to connect with one another is.
In order to facilitate this type of ‘space’, we have been exploring the idea of a regular support group, which from time to time, may also include expert talks by professionals. To test how this might work best for our members, we have decided to set up a pilot. This pilot “peer support group” will run over two virtual zoom dates:
Session 1 – 23rd August 2021: An open flow group where individuals will be free to talk about their Vitiligo experiences, and a chance for our community to meet and socialise
Session 2 – 4th September 2021: – A specialised talk by Nutritionist Kai Rai, who will provide her own insight on nutrition specifically for Vitiligo. There will be some Q & A time afterwards
The above sessions will be open to anyone who has been impacted by Vitiligo in some way. Whether you have been living with this condition, in the middle of getting a diagnosis or a carer. The aim will be to foster a harmonious environment where individuals can meet, be positively supported, and leave feeling more uplifted. A chance to learn, share information, challenges and personal Vitiligo journeys with others.
Hanna Gor, the volunteer behind the new initiative, shared her motivation behind setting up the pilot events:
After going through an emotional and challenging time trying to obtain a diagnosis, it struck me how lonely the whole experience felt. There didn’t seem to be any groups available to turn to. A chance to ask questions, or perhaps attain a few words of encouragement from individuals who understood first-hand, would have helped ease the mental anguish I was feeling.
The idea of a Vitiligo support service started to develop – I could see there was a gap, and felt such a concept could act as a great tool to positively help others on their own journey. I decided to contact The Vitiligo Society and offered to volunteer with this proposal in mind. Together, we evolved the idea into a peer support group, and here we are with the pilot! I really hope this initiative turns out to be one people find useful, as I passionately believe in it!
We will be gathering and reviewing feedback from attendees at the end of the pilot – should it prove successful, the intention will be to set up a more permanent offering in the near future.
If you feel an initiative like this is valuable – please support us and sign-up to this pilot, or offer to help our small volunteer team on other events. To get involved, or for any other questions, email us at: firstname.lastname@example.org
Please note: the sessions will not be run by trained professionals (doctors/ psychologists), if you have a query that requires support from trained professionals, then email us at: email@example.com