We are excited to announce the launch of The Parent Support Network (PSN) – a support group dedicated to children, parents and carers of children with vitiligo.
Historically known as the Parent Support Group, our vision for the group is twofold: to provide support for those who have questions or concerns relating to vitiligo and two; and to create a space where parents can feel supported and listened to, whilst being able to ask questions and feel reassured in an environment where you may share common concerns.
We will eventually look to hold community events to enable children in the UK to meet with each other, whilst providing an opportunity for parents to interact with one another. In the meantime, given the current restrictions in relation to Covid-19, we have decided to launch a Facebook page as a way of bringing parents together online, click here to join the group.
Alongside the Facebook group we will also be hosting our first online event for the network, to give parents, carers and children a chance to say hello virtually. The even is free to join, and will be held on Saturday 22nd April. Click here to visit our event page for more information and to book your place.
The Parent Support Network will be led by a small group of volunteers all of whom have children with vitiligo, or have personal experience of growing up with the condition.
Denise Oduntan, one of the PSN leaders, shared why the network was so important:
As parents, we felt it was really important to have a place that people can go to and ask the questions that are specifically related to children. It can be so confusing when your child is diagnosed and having a community that understands what you’re going through and can help navigate the challenges is really helpful. We also thought it was very important that children meet and see other children that look like them. We are really looking forward to when we can have ongoing live events with activities for children.
Why not consider joining the PSN management committee?
As part of the launch we are seeking parents and carers who would like to be involved in organising and leading the network – if this sounds like something you would be interested in then please email us at firstname.lastname@example.org